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The collection and use of real world data: Results from a 2009 survey of British Pharmaceutical companies

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Date: 17/11/2010

The collection and use of real world data: Results from a 2009 survey of British Pharmaceutical companies

 

pH Associates have been working in collaboration with the Office of Health Economics (OHE) to conduct a survey of British Pharmaceutical companies to assess collection and use of real world data. The aims of this survey were to:

  • Describe what industry is currently doing with respect to real-world evidence-gathering and evidence-generation for HTA submissions.
  • Describe the perceived barriers, and to identify any relative  advantages, of undertaking real-world studies in the UK, rather than in other countries.
  • Seek views on the impact of real-world evidence on HTA processes, from an industry perspective.
  • Provide an industry-wide perspective regarding the collection of data on health-related quality of life, effectiveness and cost of new medicines in real-world conditions.

The results showed that:

  • The vast majority of British pharmaceutical companies are actively involved in generating or using real world data to inform HTA of their products.
  • There are both perceived advantages and disadvantages of choosing the UK as the site for studies to collect real-world evidence.
  • Views on whether real world data had a positive effect on NICE decisions was somewhat equivocal: most felt that where such data had been submitted, they were only somewhat important.
  • Participants felt strongly that real world data were more likely to be important in providing evidence on outcomes in chronic conditions, cancer, and orphan areas.

The results were presented as a poster at the 13th ISPOR conference in Prague from 7 - 9th November 2010.

Please click here for a copy of the poster

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